Hi, My son Tim, told us... precisely last fall at 8yo. He had been tellling us in many ways for years... He has AS, SID, and antibody pos for Type 1 diabetes. ...
1356
gotinsulin
May 3, 2003 2:56 am
Hi again, In second grade, in a student body of 400+ students the only child Tim EVER called out a greeting to was one student, that boy had a genuine mohawk...
1357
Martina GrĂ¼ter
mgrueter@...
May 3, 2003 9:33 am
Hi Sandra, all you are telling is very typically for PA. I have a daughter with congenital PA and she is 5 years old - we know about three years now, and all...
1358
Bill Choisser
billchoisser
May 3, 2003 9:46 am
... When I read that, there were tears in mine, because I was that little boy once. Why, for God's sake, if it TORTURES him, do you keep cutting his hair!...
1359
gotinsulin
May 3, 2003 3:43 pm
... the ... Thanks Martina, SID is Sensory Integration Dysfunction: Tim's is severe hypersensitivity of All senses Light, Sound, Taste, Tactile, Smell, and...
1360
gotinsulin
May 3, 2003 4:19 pm
... , ... Yes I agree Bill for you that option makes sense, for Tim the added issues are that the SID creates these issues intolerable: bedhead, tangles, hair...
1361
gotinsulin
May 3, 2003 4:33 pm
I also neglected to mention that the Sensory system also causes Tim to do some self stimulating things as a way its the body reorganising.... rocking, pacing,...
1362
Bill Choisser
billchoisser
May 3, 2003 5:18 pm
It sounds like you and he have weighed all the issues and that is good. The really important thing is that he is involved in the weighing process and the...
1363
Michelle Wilson
mlwilson@...
May 4, 2003 2:11 am
Sandra wrote: One day my mother went to school to pick him up and he was expecting her yet he did not recognize her and he was very upset that she didn't have...
1364
Hensley Elizabeth
atomdancerrr
May 4, 2003 2:51 am
They just tied sleep apnea to ADHD and ADD. I know it was the cause with me of much of my social and academic problems. I was just too tired and too sleepy to...
1365
Michelle Wilson
mlwilson@...
May 4, 2003 3:01 am
Liz wrote: They just tied sleep apnea to ADHD and ADD. Michelle wrote: Sniglet also has sleep apnea. She is going to have her tonsils and adenoids out...
1366
gotinsulin
May 4, 2003 2:36 pm
Hi, Yes, I to beleive in the benefit of a good nights sleep! We follow a very strict sleep schedule... with a routine prior to and utilize this 90% or more of...
1367
gotinsulin
May 4, 2003 2:49 pm
One thing I forgot is we are not considering removal of t&a at this time for several reasons... Tim depends on voice recognition and has shown severe anxiety ...
1368
MImi Sheiner
imim94530
May 4, 2003 3:56 pm
T & A surgery was good for both my kids' general health, thought the experience was unnerving for the whole family, each time. our PA son was getting strep ...
1369
MImi Sheiner
imim94530
May 4, 2003 4:31 pm
...no more humidifiers, or humifdifiers in sleep-tents, no more air filters, no more croup.... m...
1370
Michelle Wilson
mlwilson@...
May 4, 2003 10:53 pm
Mimi wrote: but it was worth it for both kids. no more strep. no more sinus infections. no more snoring. no chronic throat pain, Michelle wrote: We have an...
1371
Michelle Wilson
mlwilson@...
May 4, 2003 10:55 pm
Sandra wrote: I do want to follow Sniglets progress! I would certainly think that this could be a beneficial procedure and will say a little prayer. Thanks! ...
1372
Dave Asprey
dave-spam@...
May 5, 2003 6:54 pm
Argh, don't let the doctors cut on her! Tonsils and adenoids are there for a reason. They took mine out when I was 16 because I always got strep throat. A...
1373
Dave Asprey
dave-spam@...
May 5, 2003 6:54 pm
Hmmm... I've found that certain nutrients and vitamins do help with faceblindness. Faceblindness is a subset of the autism spectrum of disorders. It is part...
1374
Hensley Elizabeth
atomdancerrr
May 5, 2003 7:47 pm
Cutting out tonsils to cure an immune system problem is unnecessary. But if the child has sleep apnea because the tonsils are too big and the throat is too...
1375
gotinsulin
May 5, 2003 11:34 pm
Hi Dave, We have had a significant improvement with Tim on DMG as recommended by the Autistic Researc Institute... We get ours in a sublingual tab by Food...
1376
zusia@...
May 8, 2003 6:31 pm
In a message dated 4/27/03 2:10:34 PM Pacific Daylight Time, mlwilson@... ... Yikes! I'll keep reading in hopes things have improved. Joey had his IEP last...
1377
Michelle Wilson
mwilsonumdinc
May 8, 2003 6:39 pm
... last ... Susan, Things with Sniglet's IEP are looking up, but we are still in the draft stages. Her IEP is about 10 pages now. We're getting there! The...
1378
zusia@...
May 8, 2003 9:51 pm
In a message dated 4/26/03 10:55:55 PM Pacific Daylight Time, ... Hi Jerald! Just last fall I learned the word prosopagnosia described what I'd observed for...
1379
zusia@...
May 9, 2003 5:16 am
In a message dated 5/8/03 11:40:52 AM Pacific Daylight Time, ... I'm so glad it's coming along. I know what you mean about them having a tough time with the PA...
1380
zusia@...
May 9, 2003 5:33 am
In a message dated 4/29/03 7:28:11 PM Pacific Daylight Time, ... This really describes my husband and my 7yo son, who are both faceblind. In fact, it's another...
1381
zusia@...
May 9, 2003 5:51 am
In a message dated 4/30/03 5:12:06 PM Pacific Daylight Time, ... This really struck home because my faceblind husband can't remember what our kids used to look...
1382
zusia@...
May 9, 2003 6:03 am
In a message dated 5/2/03 7:44:57 PM Pacific Daylight Time, ... Hi Sandra! Nice to meet you. My Joey (now 7) did this too. Thanks for jarring my memory--I'd...
1383
zusia@...
May 9, 2003 6:50 am
In a message dated 5/3/03 2:48:20 AM Pacific Daylight Time, bill@... ... You've written this before and I've taken it to heart. My faceblind son did ...
1384
Michelle Wilson
mlwilson@...
May 9, 2003 12:11 pm
Susan wrote: I'm so glad it's coming along. I know what you mean about them having a tough time with the PA and giftedness. Even though the boys' school is...