Hi Larry
I am new to this group. So sorry to hear about your mother. It has
been a while since your last posting, so I assume some of the healing
may have begun, but I bet it's still hard. Question for you, how did
you find out you had klinefelter's mosaic, gene test? The reason I am
asking is that I have all the classic symptoms of this including 38C
breasts, rounded hips, thighs, androgenous voice, and the social
challenges of being percieved as gay or effiminate. I have 4 children
however and klinefelter's almost always results in infertility. Thus,
I assumed that I could not have it. Then someone suggested I persue
klinefelter's mosaic and BAM, I think I hit paydirt. Not that I'm
glad to "have " anything, but at least I know why my brain has always
told me "you are part female, part male" even before I had breasts. I
would be VERY interested to hear from anyone else who has a similar
story
Thanks so much
M/M
--- In klinefelterssyndromesgateway@yahoogroups.com, "Larry"
<llpete@...> wrote:
>
> I joined sometime ago, but did not have much to talk about. I have
> mosiac klinfelters. For you that do not know what this is, it means
> some of my genes have an extra X and some do not. My biggest
problem
> is that I am sick all the time and have bad lungs. This past
Saturday
> moring my mother passed away at 81. Missed being 82 by one day.
> Although I told her about the klinfelters, I never told her that
they
> thought I got it from her and her side of the family. I had alway
> told her that I got it from my dad and his side of the family. You
> see my dad passed away in 1987, before I found out I had
klinfelters.
> I believe that there was no need to have her carry that burden the
> last several years.
>
> I am 56 and when I grew up there was no gene testing. I had a
chance
> to go back and read all my report cards from when I was in school
and
> all the signs were there. My mom would work hard with me to learn
and
> learning was hard. I day dreamed alot . My dad would get so mad
> because I could not learn.
>
> My mother smoked for forty years and a two years after my dad died
> she remarried. She stopped smoking then. Although she had heart
> disease and asthma she did not learn until four weeks ago that she
> had lung cancer and of all things it was from asbestos. She never
> worked with this or around it unless it was in a office where she
> worked or one of our homes. I guess I am trying to warn all of you
> that may have lung problems to get a cat scan if you are having
lung
> problems and you are in your fortys or fiftys. I leaned it could be
> in your lungs for twenty to fifty years before the symptons show
up.
>
> For me, I am going back to the doctor and get a cat scan so I will
> know if I have it or not. I can at least plan what life I have left
a
> little better. I am in the grieving process now. We laid her to
rest
> yesterday afternoon and I go back to work tomorrow. For those of
you
> who pray , please keep me in your prayers and I hope to be more
> active in this group in the future.
>