Hello Paul, I did'nt expect such a quick reply from you, because what you wrote
was dated in07. Thankyou, I appreciate what you have told me.
I am feeling very weak in my bones, and I ache all the time. And I too should be
taking calcium supplements, but I dont. But now I will start taking calcium for
my bones. I have just started selling Herballife products, and I'm sure I will
find all the vitamins and health products beneficiary.
I have been married twice, I am divorced now. I think I prefer to be single now,
I'm 49 y.o. You know, there is no support group in Autralia for ks49, I have
done it alone, my parents split when I was 17, so its good now I have a
computer, so I can chat with others with ks. I still dont fully understand why
and how I came to be born with it. I have 3 brothers and 1 sister. They dont
have it, why do I? Because of ks, my marriages have broken down, because I
could'nt give them a child. And I have'nt had contact with any family members
for over 20 years now. Only since buying this laptop have I discussed this
dreaded condition. I do see an endoctronologist regularly. He is concerned about
my bones.
Please stay in touch Paul. You sound like you know a bit about it so thankyou.
Regards Rob.


----- Original Message ----
From: pcr_ks <pcr_ks@...>
To: klinefelterssyndromesgateway@yahoogroups.com
Sent: Monday, 10 March, 2008 5:34:58 AM
Subject: [Klinefelters Syndrome's Gateway] Re: Not taking
testosterone...............

I was not daignosed until 40 years old. I was on HRT for two years
and stopped taking it. I don't believe HRT has any proven medical
benefits. They say it might help this or that, it might make you feel
better or horny. But clinically, I'd like to see what advantages
taking HRT provides. I have a group called Married Klinefelter Males.
In the group, there are members who have been on HRT for over 30
years and still have developed osteoperosis. I have members who have
gone off it for a year after being on it for over twenty years only
to notice that they weren't as horny as before and that their job
performance improved off of the HRT. I use natural supplements for my
mood (Sam-E, St. John's Wart, or B-Complex), 1500mg daily of Calcium
and I could go on. Basically, when I wanted to stop taking the HRT, I
asked my Endo and she said plain and simple, 'It depends how good you
want to feel.' 'Otherwise, I would suggest you take a B-Complex and
look into natural supplements. ' My biggest fear was the Osteo factor,
my scan at age 42 showed I was on the cusp of developing the 'penia'.
After just 1 year on 1500 mg. of calcium my next scan showed
improvement and now after 3 years, you should see my chart, my bones
are steadily growing stronger. But in the end it comes down to what
makes you feel better. My wife and I are were just discussing how
better our lives have become since I went off of the HRT. We are all
different. Before I went off the HRT I cut my daily dosage in half,
so I slowly went off of it. Then try a trial period of 3 months and
see how it works for you. Good Luck. Paul

--- In klinefelterssyndrom esgateway@ yahoogroups. com, "robert.wells50"
<robert.wells50@ ...> wrote:
>
> --- In klinefelterssyndrom esgateway@ yahoogroups. com, tdfan30
> <no_reply@> wrote:
> >
> > I have been taking testosterone for the last 17 years, I get
tired of
> > taking these shots each week, and decided to quit taking them.
What
> is
> > the drawbacks of not taking the testosterone, my wife said it
will do
> > damage to my body. What do you think?
> >Hi my name is Rob, have you tried sutagel, its easy to apply with
no
> pain inflicted. I have been on testosterone for over 30 years now,
and
> I got tired of the injections too. I just rub the gel on my upper
arms
> everyday. I have had the shots,tablets, implants, and now the gel,
and
> I have found the gel to be the best. P.S. I am new to this site,
just
> discovered it today. Regards Rob.
>





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