Dear Rob,

A couple of items in your post caught my eye. Why do you have an extra
"X" Chromosome? The jury is still out on how we come to be, but there
is evidence that we get it either from our father in the sperm or from
our mother in the egg. Others believe it happens after the egg is
fertilized and happens when the cells start to divide. Only God knows,
and He isn't telling us, because it isn't important for us to know.

As a number of the parents feel, we are eXtra special in that we have
one or more extra "X" chromosomes. We are a special gift from God,
because God knows that we can handle the daily challenges that go with
our genetic signature.

For me, I do not have a dreadful condition because I can live a normal
life, I can see with both eyes, I can hear with both ears, my taste is
great, I can smell very well, and my touch is very sensitive. I was
born with all the necessary parts to be a man, I am not missing any
important parts in my body. However, there are people born with missing
important parts, like missing eyeballs, or missing hands or feet or
fingers or their hands are attached at the elbow. My ex-wife was born
with scar tissue on both retinas so that her vision is very limited, and
there is absolutely nothing that can be done to fix that. I also know a
young man that was in a work related accident that left him with partial
vision in one eye, no hearing in one ear, no sense of taste or sense of
smell. And even he does well going from a professional boxer to being
limited in what he can physically safely do.

It is very important to use food supplements and complete protein each
day. Besides the calcium magnesium complex, I highly recommend daily
weight bearing exercises. All of the calcium in the world without
weight bearing exercise will not produce strong bones.

I was DXed at the age of 30 in 1973, and for the six months prior to my
DX, I did use exogenous testosterone; however, right after I was DXed I
stopped using testosterone. In 1981, I was introduced to concentrated
food supplements and complete soy protein. I have used these products
ever since, changed my diet taking out caffeine, most sugar and salt,
and at the age of 65, my physical, mental, and spiritual health is
excellent to say the least and I am not impotent.

Yes, I do use calcium magnesium and have for all of those years since
1981, in large amounts. My bones are in excellent condition.
Occasionally, I will take a major tumble, and can get up and feel almost
nothing. If my bones were weak, I would at least crack a bone and that
doesn't even happen.

Testosterone is NOT the panacea that many would have us to believe.
There is no way that anyone will ever convince me that God made me so
that I would have to live on man made chemicals. My research shows that
when we make sure our body gets optimum levels of nutrients, our body
will produce the necessary amounts of all hormones, not just sex
hormone.

HAVE A GREAT DAY!

Ivan, age 65, Grandfather


>
> Hello Paul, I did'nt expect such a quick reply from you, because what
you wrote was dated in07. Thankyou, I appreciate what you have told me.
> I am feeling very weak in my bones, and I ache all the time. And I too
should be taking calcium supplements, but I dont. But now I will start
taking calcium for my bones. I have just started selling Herballife
products, and I'm sure I will find all the vitamins and health products
beneficiary.
> I have been married twice, I am divorced now. I think I prefer to be
single now, I'm 49 y.o. You know, there is no support group in Autralia
for ks49, I have done it alone, my parents split when I was 17, so its
good now I have a computer, so I can chat with others with ks. I still
dont fully understand why and how I came to be born with it. I have 3
brothers and 1 sister. They dont have it, why do I? Because of ks, my
marriages have broken down, because I could'nt give them a child. And I
have'nt had contact with any family members for over 20 years now. Only
since buying this laptop have I discussed this dreaded condition. I do
see an endoctronologist regularly. He is concerned about my bones.
> Please stay in touch Paul. You sound like you know a bit about it so
thankyou. Regards Rob.
>
>
> ----- Original Message ----
> From: pcr_ks pcr_ks@...
> To: klinefelterssyndromesgateway@yahoogroups.com
> Sent: Monday, 10 March, 2008 5:34:58 AM
> Subject: [Klinefelters Syndrome's Gateway] Re: Not taking
testosterone...............
>
> I was not daignosed until 40 years old. I was on HRT for two years
> and stopped taking it. I don't believe HRT has any proven medical
> benefits. They say it might help this or that, it might make you feel
> better or horny. But clinically, I'd like to see what advantages
> taking HRT provides. I have a group called Married Klinefelter Males.
> In the group, there are members who have been on HRT for over 30
> years and still have developed osteoperosis. I have members who have
> gone off it for a year after being on it for over twenty years only
> to notice that they weren't as horny as before and that their job
> performance improved off of the HRT. I use natural supplements for my
> mood (Sam-E, St. John's Wart, or B-Complex), 1500mg daily of Calcium
> and I could go on. Basically, when I wanted to stop taking the HRT, I
> asked my Endo and she said plain and simple, 'It depends how good you
> want to feel.' 'Otherwise, I would suggest you take a B-Complex and
> look into natural supplements. ' My biggest fear was the Osteo factor,
> my scan at age 42 showed I was on the cusp of developing the 'penia'.
> After just 1 year on 1500 mg. of calcium my next scan showed
> improvement and now after 3 years, you should see my chart, my bones
> are steadily growing stronger. But in the end it comes down to what
> makes you feel better. My wife and I are were just discussing how
> better our lives have become since I went off of the HRT. We are all
> different. Before I went off the HRT I cut my daily dosage in half,
> so I slowly went off of it. Then try a trial period of 3 months and
> see how it works for you. Good Luck. Paul




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