Dear Barnslave,<br>     Do you have children?

I was diagnosed with KS, at age 27, long after I
failed at school, and my entire family came to believe I
was mentally ill. My parenta died thinking I was
retarded, my surviving siblings still believe I made the
test results up at a copy shop.<br>Life has been hard,
but I am happily married, and am buying a farm in
Nebraska. I need to speak with other KF people, who may
understand why I cry at the movies, walk & throw like a
girl, but am hetero. I am an XXY, 47, mosiac pattern
Klinefelters Syndrome patient. mshreve69@hotmail & yahoo.com

What's up?

Did any special effects happen to you, in your
head or baody or in action with other people when the
planets all lined up? With me, i experienced some
different perspective with me and some of my friends. Some
really strang experiences, and a feeling of some kind of
magnetic wave ofr something. Me and my friend were going
to go for a small drive starting at 8:00 that night.
We finally left at 11:00pm and after crossing the
Candian Boarder we traveled through Langley, Fort
Langley, Glendale, Cloverdale, West Minster, New West
Minster,Started towards Vancouver, then turned around and went to
White Rock, Clement Beach- Where we walked the beach
for a few miles in the dark then walked around town
for about 7 miles then came back down the beach to
the car and drove clear over to the Peace Arch
crossing and then home. Oh, sorry, After the beach we went
back to Cloverdale and ate a Pizza at 2:30 in the
morning before coming home. So don't worry if you think
your stories are too bizzare for the board, they
aren't.

With learning and practice, we are able to alter
the way it shows itsself, so that we can accually use
the cycle to help us instead of just trying to fight
it so that it will hender us the least amount. In a
regular cycle of any given kind that I can think of,
there is the process of how the cycle works. The
varibles, and the elements or (in our case) the different
charitaristics that have their attributes either magnified or
deminished. We can't always kill the cycles that we go
through but, by using certain tecniques, skills, and by
working with it. We can often exchange either the
charitaristics to one that harms our situation less, or in time
by changing slightly the effect that the process has
on our life and the lives around us, we can also
change the end results of said process. More
later,<br>Greenveld

Yes, Roberta,<br>There is more... he can be the
best at whatever he wants to be if he works on certain
life skills. A great amount of our large problems are
because each of our regular male chararistics can be
either magnified or deminished at any given time and
this formula can change from momment to momment.

Well,<br> I found when Nate was on the injections
every 2 weeks, by the 10th day is when he would become
very moody you would know when he was due for his
injection! Now being on the patches it seems to level his
mood swings better! <br> Roberta

Sure, <br>     The benefits I see forth and coming with my son are he'll be able
to suceed in life , and become whatever he wants to be.<br>
Roberta

I would like to focus on Moodswings, is there a particular Month that is when
certain types of things seem to start happening.  I met two girls Nov. 23, on
distant years.<br>Greenveld

We Really need to get a full perspective on this,
not only the problems, but to realize the benifits of
this syndrome and to learn to better use them to help
us compensate for the headaches this syndrome
causes.<br>Tell me what you think, <br>Greenveld

Yes I did, thankyou! Did you get mine.<br>Greenveld

Did you get my e-mail??<br>               rec

Could you E-mail me please, Email: Greenveld@...<br>Thanks, Greenveld

Thans for the info Roy. I'm looking forward to chating with your Mom!

Dear Reczdc3035,<br> The moodswings, very
carefully and prayerfully. Girl issues; yes, there are some
of those. A big turnoff for many girls is a fellow
who is not able to bring forth her children. This can
not only limit ones date ratio but also, can bring a
guys self asteeme down pretty low at times, whatever
the age. For your son to understand that a girl who
truly loves him, may still long for his children, but
will be contented by just having your sons love, if he
can contain his pride and will work with her
concerning his moodswings and his and her other needs and
hopes and dreams. This guidance from a mother,...
gentlely put,...<br>and in loving small amounts, can do
wonders in helping him throughout his life.<br>Please be
incouraged, it can contine to get increasingly better, with
certain techniques and a little support, I know, I'm
XXY47 and am 33, and the extreme changes that have
happened in my life in the last few years have been
totally amazing!!!! If only I would have had the
forknowledge when I was a little younger. Please keep in
touch.<br>Roy

Dear Reczdc3035,<br> My Mother, just got a
computer, so it might take a little while, but I think that
she will probablely be on the board soon. She helped
me at a time when there wasn't even enough
information for the docters to work with much. With her help
I have achieved goals that still have me and many
of my doctors stuned. I believe that she will be an
excellent resource for you.<br>Hope this helps,<br>Roy

Dear Leveller9998,<br> Yes, you may not only list
this board, but also my I will set up a special Email
for that purpose. I set up this Board with hopes of
World Wide Support and Information exchange, and
research as well as an integrated effort between patients,
parents, close friends, and scientists. To not only help
others to better cope and live with being XXY, but also
to be able to better apply and use the benifits of
Klinefelters to our lives. <br> I would definately be
interested in joining forces with you to create a better
International Genetics Network! Please Email me at:
Greenveld@...<br>Thank You!<br>Roy

I'am 23 and an informatic student from germany. I
have XXY and want to make a
worldwide-XXY-network.<br>I want to ask if I can list this Club to and
international search-engine only for the use of finding
contacts for genitec defaults.<br>If it's ok, please
reply.

Dear reczdc3035,<br><br>Hi, I'm not a mother of a
Klinefelters male; I'm an XXY Male myself through. Perhaps I
can be of assistance/support. I certainly remember
some of the things my Mother and I went through during
my teens, and we didn't have the benefit of knowing
I was XXY. Although I suspected it, and my Mother
may have as well, it's not something I/we ever openly
discussed. So right off the bat I'd say you have a slight
advantage in that you can at least put a name on the
"differences" or "problems" facing both you and your
son.<br><br>I suspected I was "different" at around 12-13. Up
till then I had always been fairly athletic, but once
puberty set in amongst my peers I just couldn't keep up
physically. Which I feel directly affected my self-esteem and
the course of my teen years. At 16 a name was put on
what I thought was "wrong" with me. I was in Biology
II and one day we covered XXY; very briefly, maybe
10 minutes totally. I knew right there, everything
the teacher said described me to a T, but I didn't
actually get tested until my 20's.<br><br>I can certainly
relate to what your son is feeling now; imagine
everything those teens years are and then amplify it by
about a 1000. I don't want to portray that this is a
horrible of never ending thing, but given a choice I'd
prefer XY any day, and I constantly wonder, "What if",
but I think you'll find that your son will work
through what ails him now. I can definitely say that
13-19 was the worst, and yes things do and have gotten
easier.<br><br>I think that I can provide you, as well as your
son, with some pretty easy tips that will help through
this time, and well into the future. If you'd prefer
to take the discussion private you can email me at
briggs_73@... or we can discuss it here. If you're only
interested in the assistance of other mothers I certainly
understand, but know that the offer is always there if you
need help.

I am a mother of a 17 year old ,is there any other mother's out there willing to
converse???

Victums of Klinefelters syndrome carry two X and one Y chromosomes (the norm is
one X and one Y), which causes destrution of the lining of the seminiferous
tubules in the testicles during puberty.

How do other mothers handle their son's mood swings??? Any tips out there? Also
any problems with girl issues??

Yes, and me also.

Welcome reczdc3035, <br> The Moon plays a role in
many things, as well as Hormone and chromizone
syndromes. Klinefelters is no different. As the klinefelters
itsself tends to either magnify or deminish effects of
different charictaristics, the moon tends to magnify even
the magnified effects. Sometimes, especially if it is
at its peak anyway... causing <br>others wishing
they were not around us. I used to make a lot of phone
calls at the time of the full moon. More Later....

Are there any mothers out there dealing with a teenager with K.S.? I would like
to correspond with you if so!

What does the full moon have to do with Klinefelter's??

I've been ever getting better at handling it, but, last night I was really
sensetive to low vibriating sounds.

The New Year is starting grand! I'm back in
college. I received an A and a B last quarter, and ready
with 7 credits for another quarter. <br><br> I'm
getting out my fiddle again, and have been enjoying it!
Saw my Folks all break... and got re-entergized. Let
me hear from you! You may have Klinefelters, know
someone who does, like to know what it is, or maybe just
courious. Whatever, the reason you checked us out we're
glad <br>to have you. Join in! If not from Washington
that's Ok. <br>Just bring and get information, talk,
share feelings and have fun. Share things that have
helped you in life, maybe it will appy to others.<br>To
Making YOU a better future!

Those of us with Klinefelters, know at least some
of the bad effects of this syndrome. There are also
things that work better in us then they do in most
people. Our task is to figure out how to best use our
tallents so that they best benefit us and our planet, its
inhabitants.

Welcome, This is the Yahoo! Message Board for Klinefelters Syndrome's Gateway
community.