I joined this group to discuss issues,but with 82 members no one writes anymore. It took me six years a an unecessary sugery to find out what was going on with...
Hi Larry, I am Tony from Launceston, Tasmania and I have been taking injections since I was 35 in 1975. Yes that now makes me 64 into my 65 yrs. Two short...
Next Seattle Area/Pacific Northwest Regional Klinefelter Syndrome Support Group meeting is scheduled for Saturday, September 18, 2004. For more info please go...
Hi There! There are a lot of issues covered on this site & I for one have been very thankful of the info & issues that have been discussed , if you are not...
Hi, Larry: I'll try writing just so you know someone says something. I'm on another group site with a lot of members and only a handful write. Occasionally,...
Good to hear from you John. I just was taken off of neurotin that they put me on six years ago. It took me 8 weeks to get off it and it had bad withdrawl...
Larry: Thanks for your swift reply ! Are you on TRT as well ? Why were you taking neurotin ? If all that's too personal, tell me so & that's ok. Was...
Hey, Dan, I'm 53. Yes, you can survive KS (Klinefelter's), altho it can make life interesting. You may wonder that not many people comment on this site (one...
Hello, My name is Jim I am in Texas and I am 52 and told about Ks when I was about 18 and the hormone treatments were started when I was in my mid 20's. Life...
Hello Jim, My name is John and I am from Launceston, Tasmania, Australia,. I was diagnosed with xxy when I was 35 and now I am 64. For most of my life since...
I have also wondered why it is only the kids that get the studies on Klinefelters. Jim stated that his family treated him like a odd ball because he had...
Larry: I was wondering why we had not heard from you lately. SOrry tohear you're feeling depressed. I was ok for a while, but I feel myself beginning to slide...
I am most comforted by having found this group and it gives mea feeling of warm cozy's so to speak to realize that I am not the only one in many of these...
my symptoms were lack of muscle and or muscular strength, and just the "SIZE" or you know it. which led me to bring up further questions with my doctor before...
There are many studies of XXYs - of children and adults - I have a great many on my site at http://47xxy.org/. Also there are a number of national associations...
... only ... the ... is ... A reply to Jim..About spouses..I am a fiance of a ks survivor ...He told me about it 2 weeks after we were dating. His words were I...
Hi Lea, I too have acid reflux though I never connected it to KS. That's one of the problems with the syndrome you don't know if your medical problems are the...
Bonjour, please check out (especially if you speak French :-)) Association francophone Klinefelter, http://www3.sympatico.ca/ppicard1/ a site devoted to...
Doctors told Darren Chalk a medical condition meant he would never have children. He's now a father of five, with quads the latest addition to his family. ...
Larry: I haven't heard from you in some time. Are you ok? Back to work ? What's going on with you ? John Strong Am interested in knowing how it's going for...
Hello, all you Klinefelters ! Are you out there still ? Would be nice to get some action on this site. Yes, I know we're all shy, but how about it? Are you...
Hi! John , I'm okay & from the amount of e-mails I receive everyones alive & kicking maybe you're missing them ? ,& its' been anything but quiet around here...
Hi, John ! Thanks for the reply. I've received several items on the xxylist site, but not much on this one. Are you getting stuff on this one as well ? I've...
Yes John I do but they're not as good & up to date as the other ! the English site is the worst I 've come across & they expect you to pay to become a member...
I am back to work now, and they have moved me to first shift which starts at 0600. It is hard to get use to since I just got use to working on Second Shift. My...
Hi John, I am getting nothing from this site and I have been having trouble with my server where every thing is bouncing so I have left xxy-hb2 and I am about...
Larry: Thanks so much for the update. I get nervous when people "go silent" and sometimes worry that they are not all right, not that I can do anything to...